We arrive at Zale Lipshy hospital (part of UTSW) and we are greeted by valet parking and smooth check-in. I’m starting to get a little “fiscal anxiety” because no one can seem to tell me what anything costs or what my responsibility will be. Deep breath. It will be OK.
The staff proves to be incredible. I moved from a pre-op, into the surgery itself smoothly, greeted by Dr. Marple in the operating room. Honestly, I am glad they put me out because I did catch a glance at the “tools” available to him, which appears to consist of a collection of hooks and spoons all designed to go up my nose. Night night, I’m done.
I wake up to almost no pain and the Dr. explaining they successfully removed the “entity”.
I have a really nice discharge nurse, Julie, who walked through the process including pain management, etc.
So far so good. I can breathe. Literally. The doc schedules a follow up visit in one week. All good.
8AM on day 6 after the surgery I get a call from Sally. She asks what I am doing today and how long it will take me to get there.
Umm, about 40 minutes. She says just come on down now.
Ummm, OK. This isn’t good. We head that way, a little pit in our stomach.
The New Diagnosis
Dr Marple enters the room. He says there’s been a “change”. Apparently the non-cancerous thing is actually a rare form of nasal sarcoma like I know what that is. It’s now about 9:30 AM and he informs us that my case was reviewed by the ‘tumor board’ at UTSW this morning meaning they had to meet at like 7AM, which is a multi-disciplinary panel of experts. Neurologists, Otolaryngologists, Oncologists, etc. This entire group of really smart doctors reviewed my case as a team and came up with a consensus on my treatment plan.
Whoa. I almost lose it in gratitude. Again.
The professionalism and skill of these doctors is beyond me. The care and connection to detail is such a contrast to my experience in the past. Wow.
I also have a new Dr. A radiation oncologist. The treatment plan consists of removing a fragment of my skull where the tumor was attached and covering it with a “vasculated flap” which will eventually turn into scar tissue.
Again, while I am not worried – I am grateful. I have no idea why.